Please join us on April 3 for our 2017 Annual Conference
Ethical Tangles in Neurodegenerative Disease Research: Targeting Participants at Genetic Risk
Neurodegenerative disorders such as Alzheimer’s disease and Parkinson’s disease are dramatic public health problems that will increase with aging of the population. Treatments are largely ineffective in people who already have symptoms of these disorders, but promising new research is underway to find ways to prevent or delay onset in asymptomatic people at high risk. Many of these studies use genetic testing to identify potential participants, raising a number of ethical, legal, and social questions, such as: Should high-risk status be disclosed to participants, and if so, what will the impact be? Will the boundaries between research and clinical care be blurred? What is the best way to ensure that participants can provide truly informed consent? This conference will discuss major current studies aimed at treatment and prevention of neurodegenerative disorders and the ethical dilemmas faced by the use of genetics in their design.
April 3, 2017 from 8:30 AM to 1:00 PM
Alumni Auditorium, Neurological Institute
Columbia University Medical Center
710 West 168 Street, New York, NY 10032
The conference is free and open to the public, but registration is required as space is limited. To register please email firstname.lastname@example.org by March 27, 2017.