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I Have a 50/50 Chance of Developing Huntington's Disease

August 28, 2017
By Emily Rekstis

It feels so certainly uncertain.

I don’t remember the exact moment I found out my dad had Huntington’s disease, or how I found out it was genetic. What I do remember is showing off, in high school biology, that I knew the Huntington's gene was dominant in males. My reasoning was that my dad, his dad, and his granddad all had Huntington’s. I knew my two sisters and I still had a chance at getting it, but it wasn’t as likely. This, of course, is not true...

People at risk don’t have to live in this in-between world.

The uncertainty can be put to rest by a not-so-simple genetic test. Jill Goldman, genetic counselor at the Taub Institute at Columbia University Medical Center, tells SELF that there is an international protocol which includes a DNA component that can reveal whether an individual will develop the disease. First, the person at risk will call an HD or movement disorder clinic to get information such as what the protocol entails, what the risks are, and what it costs. [read more]