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New York City HDSA Family Education Day

October 28, 2017 12:30 pm

Course Director: Ashwini Rao, EdD

Columbia University’s HDSA Center of Excellence opened in 1991. Back then, we provided care for approximately 20 patients and families in the tri-state area. This past year, the Center provided services to approximately 240 patients and families. The Center continues to operate a weekly outpatient clinic, free of charge, every Friday, from 8:00 am – 3 pm at the New York State Psychiatric Institute.


On a national level, we have been recognized both for comprehensive clinical care and research endeavors. The Center received the Ruby and Joe Horansky Award for exemplary patient care in 1995, and in 1999, we were among the first four centers in the US to be designated as a Center of Excellence by the Huntington’s Disease Society of America. Since then, we have often served as the gold standard of multidisciplinary care and have hosted practitioners from around the world to convey our model for delivering the highest quality in clinical care.

AGENDA
12:30 pm - 1:00 pm
Registration, Meet and Greet
Light Refreshments

1:00 pm - 1:05 pm
Welcome
Deborah Thorne, LCSW

1:10 pm - 1:40 pm
Nutrition and HD
Ann Gaba, PhD
CUNY, Graduate School of Public Health
Caregiver: tbd

1:45 pm - 2:15 pm
Behavioral Management in HD
Edward Huey, MD
Charissa Brown, LCSW
Terence Cardinal Cooke - HD Unit

2:15 pm - 2:30 pm
Break

2:35 pm - 3:05 pm
Fall Prevention and Home Safety
Ashwini Rao, EdD
Caregiver: Carol Baird

3:10 pm - 3:35 pm
Physical Therapy and Activity
Lori Quinn, EdD
Caregiver: Joseph Esposito

3:40 pm - 4:00 pm HD
Advocacy
MaryAnn Emerick
HDSA Board Member and HD Advocate

4:05 pm - 4:25 pm HD
Research Update
Jamie Levey
CHDI
Paula Wasserman, MA, CCRC

4:30 pm
Wrap - Up & Evaluation
________________________
Registration is free.
Light refreshments will be served.

To register, go to: https://hdsa.donordrive.com/event/1310 or contact: Casey Snyder at (212) 242-1968 ext 236 or csnyder@hdsa.org Or Paula Wasserman at (212) 305-4597 or pl2032@cumc.columbia.edu

This event is funded by the Huntington’s Disease Society of America through an unrestricted educational grant from Teva.

For more information, please download the brochure.

Event Location

CUMC, Russ Berrie Medical Science Pavilion
1150 St. Nicholas Avenue (Entrance located at corner of Broadway and 168th Street) 1st floor
New York, NY 10032