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Movement Disorders Brain Bank

Our Division of Movement Disorders Division remains committed to improving the lives of our patients through groundbreaking research into the causes, treatments, and eventual cure of movement disorders. We are constantly searching for improved treatments for our patients. Our research, and the research of others, has already lead to improved treatments for many diseases such as Parkinson's disease, dystonia, tardive dyskinesia, Tourette syndrome, Huntington's disease, myoclonus, tremor, and others. Modern biochemical, anatomical, and genetic methods have revolutionized our understanding of neurological disease. We are proud to have participated in the successful search for the gene causing inherited dystonia and for new treatments to slow the progression of Parkinson's disease. Still, many of the disorders we treat have no known cause, and we have no means to slow down their worsening. Biochemical and histochemical analysis of brain tissue donated by people with movement disorders may provide the key to understanding the cause and treatment of these disorders. Therefore, we ask many of our patients and their families to please consider brain donation as a gift of hope. This gift of hope may provide relief for those who have symptoms now and provide a healthier future for generations to come.

Participation in our Brain Donor Program

End-of-life decisions, including brain donation, are often left to the family. However, these decisions are best made by the patient and family together months or years ahead of time. Please click on the Statement of Intent and read this statement. If you wish, print it out, fill it in, sign it and send it to us. We encourage people to discuss their wishes with those who care and are close to you. Once you have had a chance to think about it, we will be glad to discuss this topic with you at any time.

If you or your family wish to discuss brain tissue donation further, call the brain donor program during regular working hours at 212-305-5779 to leave your name and address to request written information. Call the 24-hour emergency pager at (917) 899-2045 at the time of death or in an emergency.